I’ve tried to refrain from writing a blog unless something significant has happened or new information has been available. I am not sure either of those is the case, but I have felt a nudge to write this morning.
We have been showered with encouragement and prayer from folks who love me and know me well to people I have no clue who they are. We received a gift that was given through Daybreak from a lady whom I have never met. The way that so many people have reached out to us is a humbling thing. Somehow expressing thanks doesn’t seem to be enough of a response. Unlike some of you, I am not the guy who tries to read everything that there is on what issue I may have. I didn’t 22 years ago and I haven’t in the present chapter. I remember months after the cancer treatment on the sarcoma in my leg finally reading the surgeon’s notes. It was diagnosed as a stage four cancer, but I didn’t realize it then. Kind of made those “willies”go through me when I read it. There is so much more information available today than then. The Mayo Clinic portal posts every test result and every summary the doctors write. I knew the results of the latest MRI before we got halfway home. Yesterday I got an email that I had a new test result. When I went to the portal it wasn’t a new test result but one that I hadn’t read. It was one of about 7-8 that came from the bone marrow biopsy. Lots of the results of the tests are in “medical speak”and I have a tendency of scanning through them. This one was considerably in that language, but the results were understandable. The diagnosis: Multiple Myeloma with the possibility of being Smoldering Multiple Myeloma. We knew that was the case, but somehow when you read it in black and white it comes home to you. As I anticipate returning to Mayo Clinic on Sunday for radiation treatments that begin on Monday, it is the one more bone scan and the results of that scan that are more on my mind than the radiation. I have been a follower of Jesus for over 50 years and a pastor for 40 years. I have preached countless times on prayer from suggestions on how to pray to the power of prayer and most everything in between. I believe in prayer. I believe that prayer does a number of things. Often the greatest benefit of prayer is what happens in our own lives when we pray. God often changes us through prayer. I also believe that prayer releases the power of God into this world. In my limited insight into the Bible, I believe God’s Word bears that out. God didn’t send His fire to consume the altar until Elijah prayed. Not once did I pray for my own healing 22 years ago. Not once have I prayed for me in this one except to ask God for His grace, but never for my healing. Like prayer, healing is a very difficult truth to understand. Why God chooses to heal in some circumstances and why He doesn’t in others will only be understood in eternity. When Jesus healed the man at the pool of Siloam who had been there for 38 years, the Bible in no way indicates that Jesus healed everyone that day. And at some point, God chooses not to heal all of us. The mortality rate is 100%, except for Enoch and Elijah. What prayer does as you walk through this with me is multifaceted. This short list is in no way exhaustive. And in each of these the Romans 8:28 principle applies. ●At the top of the list is that as you pray, there is a deepening of your relationship with Jesus. ●Your faith is put into practice. ●You give God the opportunity to bring His healing, in whatever way He chooses. ●Somehow there is a divine deepening of the relationship that you and I share. I could share several illustrations of how that has already happened, but one that moved my heart unexpectedly. We have a customer who I would consider a “man’s man”who is about as worldly as they come. He is a sportsman in every sense of the word. Often he apologizes to me for the language he uses. More than once he wasn’t sober when I have stopped by his store. I have said for some time that being a bi-vocational pastor has enabled me to be in the world in ways that I never was the 15 years I was a fulltime pastor. That has surely been the case with this guy. He has been as concerned about me as anyone beyond our family. He was leaving on Monday to go to Las Vegas with his girlfriend. He called me on Sunday to ask a couple of questions about work and about me, knowing I was heading back to Rochester soon. At the end of our conversation,his voice breaks a bit and he says to me, “I love you, man.” Say what? Are you kidding? This man of the world with no profession of faith (yet!) expresses his love through both the words and the tone of his voice. And I responded, “I love you, too.”I must admit that it was with a somewhat broken voice. God is at work, bringing about His good in ways we could never expect nor orchestrate. I am just along for the ride. Thanks for being a part of the journey with me.
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After two days of testing, it was good to get home last night about 1:00 a.m. I wish I could say the trip home was as uneventful as the trip was going.
In the span of about 10 minutes Tuesday evening, Larry’s car was struck and I lost a credit card. Yesterday’s tests went far better than I anticipated and were a bit earlier than scheduled. We scooted out of Rochester ASAP before what was predicted to be as much as 18 inches of snow. Dealing with cancer often brings tremendous emotional swings. Yesterday was one of those. We finally got the results from the bone marrow biopsy. The initial results indicate that I possibly have “smoldering multiple myeloma” (SMM) which would be marvelous news. SMM means that I may have the “precursors” (might not be the right medical term) to the disease, but not have the active disease. If I have SMM there would be no treatments needed now and it might not manifest as MM in the next five years, if ever. With that welcome news we rode the emotional roller coaster up. It didn’t take long before the coaster came back down. The results of the biopsy are indictive but are not conclusive. The only way to know for sure is to have a bone biopsy on one of the lesions. And the results on from the MRI yesterday indicated some additional concern about the marrow lesions. So we really don’t know anything more for sure than we have from the beginning of the testing. We do, however, have considerably more hope than at other points in this journey. I return to Mayo on March 5th for two weeks of radiation. We are hoping to have the bone biopsy during that time and some conclusive news by March 16th. The waiting continues. We live in an amazing day when it comes to medical treatments. In the previous blog I shared a “question” in my mind about how a small dose from an injection could have bearing on hormones for months. The injection was in my abdomen and now at the sight of the injection is a small “lump” that I can feel. It contains the medicine that will destroy the hormones that feed the prostate cancer. As that lump dissipates over the next 4-5 months, the medicine will go into my system. Instead of needing multiple injections I had just one. Wow. Yesterday I was wearing a Kentucky pullover, which I often do when I am in Rochester. I met a couple from Russell Springs. The wife started radiation treatments on Monday. Sure looked to me like Dorothy could use some of the prayers that you have been sending for me. To complete the opening teaser. Larry and I were sitting in the DQ drive thru waiting to order when we felt a rather strong whack. A lady with two kids apparently was more concerned about getting her money ready than seeing the SUV in front of her. Some damage to Larry’s car but not extensive. And within two hours someone tried to use the already canceled credit card. He rang the bell! I shared with you about the young boy with a patch on his eye who brought in cookies and candy for the staff. I had hoped that he was finishing his radiation treatments. My perception was correct. Yesterday was his final of 30 treatments for cancer. When you complete your last radiation treatment, there is a bell in the hallway that you get to ring. I had already gone back for my procedure on Monday and I missed the celebration of his family, the staff, and everyone in the waiting area. He rang the bell. When you hear a bell in the next few days, a prayer for the complete healing of a young boy would be a great thing. God knows his name and his circumstance. Looking forward to ringing the bell in about three weeks. Sunday worship was a very blessed morning. My niece was baptized and some others made decisions to return to the Shepherd. I guess God isn’t finished with me quite yet.
The trip yesterday was gladly uneventful. Larry C. and I split the driving. In bed about 11 Mayo time. The weather forecast for Rochester was mild and clear. We woke up to 25 degrees and snowing. Less than an inch of snow here must not even be forecasted. Calling for a major storm on Tuesday afternoon, so we are hoping to get out of here before then. I have felt for some time that all I went through 22 years ago meant that I had met my lifetime quota of tests, treatments, etc. Wishful thinking. I looked over the schedule for the day. Mayo is magnificent at planning appointments, knowing that many folks come from a distance. One consultation and five procedures, none of which I will relish. I have some of the same feelings that I had 22 years ago on the first day of coming to Mayo. Lots of unknown and knowing I am going to be poked and stuck, while at the same time having some trepidation of going through the procedures. I can say that I wouldn’t call it fear. Some folks might. Larry lets me out of the car and I head into the main Mayo building feeling a bit of something. Not self-pity. More of self-focus on what I am facing today. And like God does so many times for all of us, He brings His discipline in just the way that I needed. The very first person whom I encounter is about a seven-eight-year-old little boy in a wheelchair. His body was somewhat handicappped and the look on his face, even through the mask, was one of fear. I couldn’t help but pray, “Lord, give that little boy whatever grace that maybe folks had prayed for You to give to me today.” It was about a 15-minute walk to the first appointment. As I am waiting to be called, a mom wheels in another child and they “park” close to me. He’s about 10 years-old and has a patch on his left eye. I am at the radiationon cology desk. This little boy is dealing with cancer or he wouldn’t be there. It’s obvious that this isn’t his first time in this waiting area. He was greeted by the staff with an obvious familiarity. And to beat it all, he has this huge small on his face. I’m pretty sure that’s not what he saw on my face. In his lap are two things: a huge bag of candy and a large container of cookies, possibly homemade. His mom wheels his chair behind the “desk” where he presents the good stuff to the young man at the radiation oncology desk. It appeared that they were gifts of gratitude to the staff for their care of him. When he rolls back to his waiting spot, there is this even bigger smile on his face. Discipline #2. This one, however, came with a great sense of joy to celebrate with this young lad. I pray that maybe it is the culmination of his radiation treatments. Two little boys dealing with far more than any child should ever have to deal with. I guess the Lord has prepared me enough that I will be able to handle whatever comes today. 8:00 p.m. Mayo Time Hungry and exhausted I climbed into Larry’s SUV about 5:30. I couldn’t eat anything all day because of the tests. Some were textbook like having blood drawn. We’ve all gone through those. The main reason I am here is to get ready for radiation in a couple of weeks. The procedure today no man would ever want to endure. Sedation was little more than a Tylenol and I was more than cognizant of everything that was happening. Uncomfortable would be way too weak of a word to describe it. Two folks were working on me. Not too long after the pain had begun, I felt this hand on my shoulder, patting me lovingly and gently. The tech didn’t say a word. But each time they changed to do something else, I felt this hand of encouragement. I can’t say I felt like it was the hand of Jesus in any way, but it was a hand that God used to give me comfort and grace. After it was all over, I thanked this man for what he had done for me. It may be something that he does each time for each patient. I sure hope so. I headed to another building for the hormone injection. Hard to believe the medicine in a small syringe is enough to basically destroy your hormones for several months. As I am headed back to the next to last procedure, I walk through the lobby to get to another building. As is often the case, someone was sitting at one of the grand pianos. Over the years I have heard classical music, a bit of contemporary music, and even Christian music. As I walk by I recognize the song the young man was playing. I began to sing as he was playing this chorus: One day at a time sweet Jesus That's all I'm asking of You Just give me the strength To do everyday what I have to do Yesterday's gone sweet Jesus And tomorrow may never be mine Lord help me today, show me the way One day at a time Could there be any better song for someone to play at Mayo Clinic? Lord help me today, show me the way. One day at a time. The PET scan was the final procedure for the day. I will know the results in the morning. As yet, we haven’t heard the results of the bone marrow biopsy. Very unlike Mayo. Hopefully tomorrow. Let’s cap this off with a text I sent to our family after the long day. Best vitals of the day: BP 122/57 Heart rate 61 Blood sugar 98 O2 level 99% Other than having cancer, I’m pretty healthy! Thank you, Lord, that you had enough grace for that little boy and for me for this day. I didn’t intend to write another blog until Monday evening when I will be back at Mayo. I don’t have any update on the results from the bone marrow biopsy. I likely won’t; the doctor who will relay that word is gone all this week.
If you are reading these blogs only for information about the medical side, then you can stop here. If not, then I invite you to read what could be a chapter in a book that maybe someday I may write. Yesterday was a day that I will long remember. There are many lessons that only a crisis in your life can teach you. We never want to go through them, but we know that God has a way of using them in ways that we could never imagine. Paul writes in Romans 8:28 that “God works in all things to bring about His good for those who love Him and are called according to His purpose.” The old KJV is a bad translation when it says that “all things work together for good.” Things don’t work together. God works in all things to bring about His good. God is able to take the worst of life’s circumstances and transform them. The Cross is the greatest example of that. God takes the very worst of all human atrocities and transforms it into the greatest blessing and hope that the world has ever known. Yesterday was a Romans 8:28 for me. Had I not had to deal with cancer, none of three circumstances would have occurred. I stopped by the Court House in Cynthiana to register one of our trucks. I’ve been wanting to see my best friend when I was growing up and he has an office right around the corner on the main drag. Parking on the street is limited, but I thought, “if there’s a spot near his office, maybe I’ll run in and see if he’s there.” Somehow I don’t think it was mere coincidence that there was an open spot right in front of his office. John is a lawyer. He was finishing up with a client and had some free time. We hadn’t really talked for 50 years. We’d see each other from time to time on the street or in a restaurant, but never a serious conversation. It’s amazing how after 50 years there’s still a closeness that time couldn’t destroy. I spent more time with him growing up than anyone else. He was my best man when I got married. We lived in the same neighborhood most all of our lives, but we came from two different worlds. His dad was a judge and his mom a teacher. Neither of my parents graduated from college. When I was four mom and dad started the business and the three of us kids had no clue how tight things were. I thought everybody ate mustard sandwiches for lunch and fried bologna for supper. John’s first car was a Jaguar sports car. My first car was a 1971 Ford Pinto. I never remember a day in high school when John didn’t wear a button down shirt. I can’t remember a regular school day that I did. And yet, there was a closeness that we knew that returned like it had all happened yesterday. John has become absolutely the last thing that I would ever have thought would ever happen. He’s become a farmer. Raising cattle. A lawyer and a farmer. I laughed like I hadn’t in a while as he told me about his side vocation. At some point John turns, opens the drawer to the credenza behind his desk, and takes out a two page file and hands it to me. Across the top is Mayo Clinic. He shared with me an experience that I had never known that happened in his life about 10 years ago. As hard as it may be for you to believe, the file explained the results of a bone marrow biopsy that John had at Mayo. After not so good news John went through months of treatment. And 10 years later he is still alive. There are lots of things that are hard to deal with when it comes to cancer. The unknown and then the known. Maybe the greatest is the struggle of losing hope. God put a marker in my life yesterday, a marker of hope. Not just the hope that healing in this life might happen, but rather that Biblical kind of hope that brings assurance that there is One who is behind the scene orchestrating what we could never. Thanks, John, for being that marker of hope. I headed back to the warehouse to get some things done. It wasn’t long until everyone had gone home and I was there alone. Rhonda came a bit after 6:00. I knew she had been wanting to speak with me and I with her. I am blessed with two marvelous older sisters. In many ways I am more like Jan. We share so many of the same perspectives of life. Since she went to college when I was 12, we have never had the privilege to spend the time together that Rhonda and I have. But I love her nonetheless with a deep love. It's kind of like being a parent. We have two daughters and I love them both. I don’t love one of them more than the other one. But I do love them differently because they are different personalities. That’s the same as my love for my sisters. Other than Teresa, there’s no one in this life with whom I have spent more time than Rhonda. We traveled for seven years together singing (that would be her!) and preaching. The year after I graduated from seminary she and I traveled across the Eastern US, just the two of us. And for the last 27 years we have worked together at the warehouse. I know her pretty well, as she does me. She’s been carrying this weight on her heart that I knew was there. A second coincidence that she and I would be there late when no one else was? Rhonda has never handled death or the thought thereof very well. If you know what happened early in her life, you’d understand why. Her best friend when she was a child was killed in a tragic train accident. Her best friend when she was a teenager was killed in a very strange car accident. In the days before seat belts, this friend’s dad stopped the car quickly and Marsha hit the dashboard. The only mark on her was at the top of her nose. When Rhonda was in college the man she was planning to marry was killed in a traffic accident on the interstate. Her husband Steve has had cancer twice. Just last week Steve had a stroke. And her baby brother’s life could be in the balance. And without him, running the business could be nearly impossible. I have been one of the stabilizers in Rhonda’s life. She has been one of the encouragers in my life. She spent a half an hour getting off of her heart of what she was feeling. We then spent a hour trying to make some plan about how things might work when I wouldn’t be there. We both left with some hope that maybe, just maybe, there could be a plan. We also left with a deeper love for each other, something neither of us could likely have believed could or needed to ever happen. Well, I said three instances, God instances I believe in one day. Life is lived with an ebb and flow. Sometimes we have mountain top days and sometimes walking through the valley days. God uses them all to bring about His purpose. Back to Romans 8:28. His purpose in all things is to do one thing: to fashion our character more into the likeness of Jesus. I head out of Cynthiana after 9:00 pm. I hadn’t stopped for lunch, so I drove through the drive thru at the DQ to get two double cheeseburgers, no cheese and no condiments. I lost 35 pounds this summer eating a lot of protein and little salt. Who could ever believe that you could have a God moment going through the DQ drive thru? Both lanes were open and there was a car in the left lane and I pulled into the right side, ordered my burgers, and was finished before the car on the left. The car on the left moved forward and so I stopped and motioned them to go ahead. They were there first and I felt that was the right thing to do. When I got to the “pay” window, the young girl said, “Yours has already been paid by the car in front of you.” I pulled up behind that car and got out and walked around the passenger side to thank them. I hadn’t noticed until I got close to their car that it was a beater of a car. Worse than my 13 year old Explorer with 320,000 miles on it. I looked in the window to thank them for buying my meal. What I found was a young family of four. Two kids in the back seat of this beater. I asked them if they lived in Cynthiana. They said, “Yes, we just moved here. We had to move because we were wrongly evicted from our previous apartment.” At this point it was all that I could do to hold back the tears. Unlike Rhonda, tears rarely flow. Cancer somehow releases the tear ducts, at least for me. A young family trying to make a new start buys my meal. Are you serious, Lord? I got back in the Explorer, knowing God wasn’t done yet with that moment that His hand was upon. I almost always have a $100 bill in my billfold, sometimes tucked away, just in case. Dad always had a $100 bill in his billfold, just in case. I took that out of my billfold, folded it once, and walked back to the passenger side where the wife was sitting. I handed it to her so that she could see what it was. All I said to them was this, “There are times when you give that God blesses you a hundredfold.” I nodded and they knew that God had helped meet their need. I sent a letter to my Elders last week and the last line was this: “one of the great things about using a computer is that the tears don’t stain the paper.” I feel that as I write this about this young family. I have tried to live my life as a giver. Teresa has been a great partner in that. In some ways she is more of a giver than I am. My mom and dad were great models of that for me. Mom was the best giver I have ever known, in every area of her life. I guess I married my mom. Good givers, however, are usually not so good receivers. My mom wasn’t and I am not. That’s one of the challenges of dealing with cancer. Folks want to do something, but other than prayer, there’s not a lot that folks can practically do to help. Except give. God has blessed us financially so that we don’t “need” any help financially. Yet, many who love us have already blessed us with their gifts of kindness. Lord, teach me that what you said is true. It is more blessed to give than to receive. I have tried to live out that truth all of my life. But there is within this truth that there is also a blessing in receiving. It isn’t nearly the blessing of giving, but it is still a blessing. And Lord, help me realize that it’s really hard for others to get the blessing of giving, if I am unwilling to receive it in the love in which it was given. The young family in the beater car enabled me to experience the blessedness of giving because they received it with gratitude. There was one final kicker to the DQ story. I called Teresa and we talked about what had happened in each of our lives that day. I didn’t open the bag from the DQ until I stopped for fuel. I took one burger out of the bag and it wasn’t the right burger! Apparently the bags got switched at the drive thru. Just two single cheeseburgers, no fries, likely for two kids in the backseat because that is what they could afford. Much love as I begin another day, a day that the Lord has made, I will rejoice and be glad in it. By the grace of God and the power of an appointment secretary, our appointment for the bone marrow biopsy was moved from Friday afternoon to Thursday morning. That meant that we could head home Thursday noonish instead of late Friday afternoon.
After some snow for about 250 miles, we hit some just wet roads. Teresa was a trooper driving and the closer we got to home, the more both of us were resolved to make it without stopping for the night. We got in about 1:00 a.m. Oreo was more than pleased. The bone marrow biopsy was about as I expected. The nurse was a personable lady who helped ease the anxiety. Looks like I might as well get used to them. If the biopsy confirms what is suspected, after the treatment has been administered for 100 days, I would have another one and then consistently throughout the treatment. The anesthetist was a fisherman and we talked fishing, including his three and five year old sons. That, too, helped. I will take that same team when/if another biopsy is in the future. When the biopsy was over and they were ready to release me, Teresa and the nurse talked about where Teresa should pick me up. I told them I thought that I could walk to the car, which was a considerable distance away. I will leave it to you to decide what you think happened. I have had a couple of “moments”in the last couple of days. One was when I was walking the corridors of Mayo before the biopsy. I had to walk on the subway level past the three main buildings. It was a long way and I left Teresa near the elevators upon which we would ride to get to the biopsy. I was walking rather briskly, appearing to most anyone to be a picture of health. I passed numerous people in wheelchairs and folks barely able to make it. Today, I drove to Cynthiana to try to catch up on some things after being gone nine days. I walked in and one of my guys confirmed my appearance. He said, “You look great.” I am not sure what he thought I’d look like after seeing three doctors, having some blood work, and the biopsy. What came to me was this: If you compared me to other patients yesterday at Mayo, I looked far better off than 75% of them. But if I have what the doctors suspect, then I may be worse off than 75% of them. Lots and lots of Christians I have known over the years are like that. They look really good on the outside, a picture of spiritual health, but something that can’t be seen may very well be destroying them from within. And the second moment came when I got a text from a dear brother who said in essence, “I haven’t texted or called because I know that you have had an abundance of both.” I have a feeling that many of you who may be reading this have been in that same camp, wanting to text or call, but knowing if everyone texted, I might not get anything else done. I have found in this challenge already, that short, to the point words of encouragement help. That wasn’t the end of his text. My dear brother went on to say, “But be assured that I am thinking of you and praying often. Just remember I will always be standing in the back of the room.” Sometimes God comes when you least expect it. None of us has any clue what God looks like. Sometimes its hard to visualize God’s presence; we may have a sense that He is there but how do we visualize Him? There’s no one I know who is any more like Jesus than this brother. Going forward, each time I am in one of those dreaded moments of medical care, I will visual this brother’s face and believe that I will realize that God, indeed, is standing in the back of the room. Kind of like that fourth person in the fiery furnace. I will write another blog when we either get some news, head back to Mayo, or God speaks in a way you might want to hear. Thanks for all your prayers. How much blood can a person lose and still function? I was wondering this morning after the tech took the ninth vial of blood. I asked her if I was out. She said, “Don’t worry, it’s about the same as if you gave blood.”
We wanted to give you a quick update. The biopsy has been moved from Friday afternoon to tomorrow morning. Hopefully that will get us home on Friday and me a full day to get ready for Sunday. Just one tidbit: Folks in Minnesota live a bit differently than at least I do. The blanket and the comforter on the bed are one piece. So it’s feast or famine--burning up or freezing. It reminds me of when I was a kid and went to grandma’s and she had three quits on the bed. You could hardly move. In these blogs there has been a lot of information because that’s been the focus. We’ve all wanted to know. Somehow we deal better with the known, even if it is difficult, than we do with the unknown.
Let’s start with the information. Not much happening today. Blood work early and hopefully getting some questions answered about timing. I said at the beginning of posting these blogs that 22 years ago I journaled and kept those “unpublished.” There was much in those daily journals that writing down my feelings somehow helped me deal with things. I am sensing that may become the case with these blogs going forward. We will still give you information to keep you in the loop of what is going on medically. Added to that you may get some insight into my heart and mind. Sleeping is usually a challenge for most of us when we are in a crisis. That was the issue for me last night. There’s a lot on my mind. Realistically, the Lord willing, I have four more Sundays before I begin the radiation and hormone therapy. Then likely right into the treatment for the bone disorder. I am not sure beyond the next four Sundays when I will preach again. That’s tough to think about when you’ve preached pretty much every Sunday for the last 50 years. As I laid there I began to ask, what do you preach on when you know it’ll be awhile before you have the privilege again? And in the stillness of the night, the Lord gave me four themes for the next four Sundays. I have been preaching through the book of Isaiah. This morning was the marvelous passage from Isaiah 61. Two of the themes for our Six Weeks to the Daybreak Lenten Devotional Guides come on back-to-back days from Isaiah 61. So as to not steal any thunder from those devotions, let me quote a couple of verses beyond the verses for the devotions: “to bestow on them a crown of beauty instead of ashes, the oil of joy instead of mourning, and a garment of praise instead of a spirit of despair.” Beauty instead of ashes, joy instead of mourning, praise instead of despair. Lord, if I can face this chapter of my life living out that promise, then maybe I can live out the end of verse 3: “They will be called oaks of righteousness, a planting of the Lord for the display of his splendor." I want to be an oak of righteousness for the display of Your splendor. Use me to that end. We knew when we came to Mayo that there would be a day that would be a defining one. It looks like today is it.
We didn’t get the news we had hoped for today, but it was not surprising news. We met for about an hour with the Dr. Nelson Leung who is on the Multiple Myeloma team at Mayo. Though we haven’t had the bone marrow biopsy yet to confirm it, the folks at Mayo are proceeding believing that I do. I asked Dr. Leung what could it be if it wasn’t MM? He said, “we have no clue.” Some extensive blood work is scheduled for Wednesday morning and the bone marrow biopsy for Friday afternoon. He asked me if I wanted sedation or no sedation for the biopsy. You don’t need to ask what I chose. The results that would conclusively determine that it is MM won’t be available for a week or maybe two. Dr. Leung wants the prostate cancer treated first so all of the focus can be on the treatment for MM. Our hope is to return home by Saturday afternoon and be in church this Sunday. I am to return to Mayo for two days, February 20-21, to be set up for radiation treatments. Then we would return home for about 10 days before the those treatments. I would have five radiation treatments that are scheduled to begin on March 6th and be every other day for 10 days. Near the close of those (around March 16th) I would receive one dose of hormone therapy that is intended to remove as much testosterone as possible for about six months. The plan would then be to begin treatment about the end of March or the first part of April for the MM. At some point Dr. Leung believes I will be facing a stem cell transplant. When/if that happens we would be staying in Rochester for about a month. Obviously, many changes lie ahead for every aspect of my life--church, business, family, and the things that I enjoy. For all of those we ask for your prayers for wisdom and direction. I did learn somethings today that might bring some wisdom to your life: 1.) Ice cream has a healing agent to it. It seems to always make me feel better when I need a lift. 2.) In the middle of trials, it never ceases to amaze me at the timing of God. 3.) Prayer does change things, often not the circumstances, but changes us in the circumstances. 4.)When one of your kids says, “Dad, I know you are a fighter” brings you a resolve to be what she believes you to be. Much love, Chuck After Dr. Brian Davis (the radiation oncologist) on Friday had told us that the best treatment for me for the prostate cancer would be radiation, not surgery, I wasn’t looking for this morning’s appointment with the urologist to be too productive. I couldn’t have been more wrong.
Dr. Igor Frank walks in, sits down and the first thing that he says to me is this, “I am a surgeon who performs prostate cancer surgeries. As a surgeon, I wish I could say to you that the best treatment for you is surgery. But I am here to tell you that would not be your best treatment. Radiation is.” How’s that for a magnificent doctor? Dr. Frank has a persona about him that few people have. You can tell immediately that he is extremely bright and knowledgeable. But there isn’t an ounce of haughtiness in him. He also comes across as a very caring man. He had gone over all my tests, scans, etc., and even knew who the surgeon was who did my abdominal surgery in 2012. Dr. Frank was to consult with Dr. Davis sometime today and the two of them will determine the next step for me. It is his opinion that I have something in the bone that is an issue. So, it appears that a bone marrow biopsy may be the next major test. I asked him how painful that will be. He chuckled a bit and said, “Well, you’d be under sedation, but they do have to get to a bone and drill through the bone.” Maybe a special DeWalt drill? Hopefully not a cheap one from Harbor Freight. Dr. Frank confirmed that I do have a moderately aggressive prostate cancer that cannot be left untreated. We spent the day anticipating some word on the next step but that word didn’t come. I have an appointment with the hematologist in the morning. Hopefully we will get some clue as to how they will proceed. Some things I have learned since the last post: 1.) The key card at the motel doesn’t work no matter how many times you swipe it at room 123 when you are staying in room 119. 2.) Minnesotans must have really thick blood. We stopped in Sam’s to pass some time over the weekend and they had bathing suits and ski life jackets on display. Hum. It was just 15 below. 3.) It’s a wonderful thing to have worship online when you can’t be there in person. But it’s nothing like being there with others. Much love and thanks for the prayers. If I had to pick one word to summarize the day, that word would be: encouraged.
We were able to set up the opportunity to return to Mayo through the radiation oncologist that we knew, because that was our only contact at Mayo. As we indicated earlier, she was away and her resident was thrown into the role of trying to figure out who we needed to see. Words can’t convey how much I appreciated the two of them getting the ball rolling. This afternoon I was blessed to see Dr. Petersen again after 22 years. Getting your foot in the door at Mayo is the first step. Sorry about the pun. Once here, someone will figure out a plan. We had an hour consultation with a radiation oncologist. Dr. Davis is a marvelous man with a great heart. No one at Mayo knew what direction I needed to head or had put in motion the plan to determine it. Dr. Davis lovingly chose to spend an hour with us. After looking at the scans, he eventually started calling radiologists at Mayo on Friday afternoon at 4:00 p.m. until one answered his call. The two of them took at least 20 minutes looking over the scans and seeking to determine some plan for me. I will forever be grateful to him for that. He could have sent me on our way to the next doctor, but he chose not to do so. He was not pleased with the direction of what was already scheduled. He would (hopefully will) be the doctor who will at some point treat the prostate cancer. In his words, the scans “didn’t look like a lit-up Christmas tree,” which was good news. When possible, the treatment for the prostate cancer would be 5 radiation treatments, every other day and would be completed in 10 days. That would be followed by a hormone injection that would greatly reduce the amount of testosterone in my body. The side effects would last for about six months. Fatigue, possible weight gain, and some others. As for whatever else is going on, neither he nor the radiologist could give a definitive answer. The PET scan that was done on Wednesday in Lexington was inconclusive because the focus of that particular PET scan was to see if the prostate cancer had spread, not to see if there were other cancers. That means that I will likely have a different PET scan the first of the week. None of the scans so far is definitive that I have multiple myeloma or that it isn’t multiple myeloma. The spots that have been observed on the scans indicate that something abnormal is going on. We just don’t know, as yet, what it is. It looks like additional testing will be done the first of the week, including possibly a bone marrow biopsy. So we really don’t know a great deal more than we did, other than that there seems to be a better plan to come up with the plan. I told Dr. Davis that we were planning to stay in Rochester until they diagnosed the problem and came up with a treatment plan. So we are encouraged. We had a couple of blessings along the way today. One of them was when we were eating supper after the consultation. We so appreciate your loving response to all of this, one of them the gift cards that some of you knew about and gave to Dottie. I only know who gave one of them, a gift card to Texas Roadhouse. While we were eating at Texas Roadhouse, I texted this couple, thanking them for loving us. They responded, “Enjoy! We are having beans!” Laughter always helps. Let me close with some things that I have learned today. 1.) The old saying that goes something like “being cold to the bone” is true here. Getting fuel early in the morning when it’s this cold meant that I didn’t thaw out for most of the day. 2.) You can be served four eggs at Burger King for $4.20 or four eggs at Denny’s for $12.83 plus tax and tip. Hum, I wonder where I will order eggs in the morning? Likely we won’t blog again until Monday after two chapters of a book we sent you today. Thanks again for your love, prayers, and encouragement. |
Chuck Cooper
Pastor at Daybreak Community Church Archives
September 2024
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